Helpful Resources
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Ayuda en español- Parkinson Foundation
https://www.parkinson.org/espanol Alzheimer's Association American Academy of Neurology Excellent free magazine Brain and Life Mailed or emailed, also en espanol . Also an excellent email newsletter where you can specify interest in Parkinson's information. American Parkinson Disease Association Provides outreach, support and education in the Western United States. APDA Information + Referral Center At Stanford Provides Parkinson's Disease patients, their families, friends, physicians, and other medical professionals with education, assistance, and resources to help understand and manage Parkinson's Disease and to improve the quality of life for both patient and caregiver. Booklets available in many languages incl Spanish Brian Grant Foundation
Established by Brian Grant, 12 year veteran of the NBA, after he was diagnosed with young-onset Parkinson's at the age of 36. The Foundation focuses on promoting wellness, exercise and nutrition to the Parkinson's community. Brain donation
APDA Brain donation Stanford Alzheimers and PD Brain donation Parkinson Foundation What is PDBrain Donation? NIH Brain and Tissue Repository – California Helping Scientists Help Patients Gift of Hope article and donor enrollment packet CA DMV Senior Guide for Safe Driving
Includes a Driver Skills Self-Assessment Questionnaire Call Senior Driver Ombudsman at 916-657-6464 California Phones for the Disabled
California Phones from the California Telephone Access Program makes it easier to stay connected. They offer free specialized phones that make it easier to hear, dial, and call. Over half a million Californians are already enjoying California Phones. Family Caregiver Alliance Great resource for Caregivers offering classes, webinairs, policy and advocacy. At Camp for Caring, Campers spend a weekend (Friday to Sunday) in a retreat setting while their caregivers can enjoy a 48-hour break from their caregiving responsibilities. Coalition for Compassionate Care of CA The Conversation Project -- End of Life CurePSP Society for Progressive Supernuclear Palsy Davis Phinney Foundation
The Every Victory Counts® manual—and its companion website—is the gold standard resource to help you live well with Parkinson’s and achieve your personal wellness goals. Free online or Booklet(pay shipping cost) *Worksheets for Dr. Visits, Dentists, Carepartners, Travel, newly diagnosed, medication logs, self-assessment, home safety lists and many more. HollyRod Foundation For Help and Hope HollyRod Compassionate Care enhances the quality of life for people with Parkinson's disease. This program provides care, services, and resource information to those who have little or no healthcare insurance and limited financial resources. Services provided through Holly Rod Compassionate Care may include: Assistance obtaining medications; Home safety assessments; Assistance obtaining treatments and therapies not covered by insurance; Assistance obtaining adaptive equipment; and Counseling services. Lewy Body Dementia Association Life Care Planning Kaiser has produced a resource - open to anyone - for advance care planning. Kaiser calls this "life care planning," and has created a website devoted to reflecting on your values, selecting a health care agent, expressing your decisions, and sharing your wishes. LSVT Foundation
LSVT Global, Inc. pioneered the Lee Silverman Voice Treatments (LSVT LOUD® ; andLSVT BIG® ), innovative and clinically-proven methods for improving communication and movement in individuals with Parkinson disease with application to other neurological conditions. Michael J Fox Foundation A wealth of information on PD and related diseases. Also supports research and lobbying policymakers. Move It! An Exercise and Movement Guide for Parkinson's Disease. Movement Disorder Society
An international professional society invested in the research and care of patients with Movement Disorders, including Parkinson's disease. |
Neurology Now Magazine A bimonthly magazine for neurology patients, their families, and caregivers, the official publication of the American Academy of Neurology (AAN). Provides coverage of therapies based on the latest developments in laboratory research and clinical trials. Subscriptions are free to patients. Northstate Therapy Choir
Led by Board Certified Music Therapists, this choir for individuals with Parkinson's Disease, their families and/or caregivers uses neurologic music therapy techniques to address Parkinsonism. Fall Semester runs Aug 31st - Dec 22nd 2020 Spring Semester runs Jan 11th - May 10th 2021 For more information or to sign up email erin@haleymusictherapy.com Northwest Parkinson's Foundation
A dynamic Parkinson's support organization serving the greater Northwest. Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy Partnership For Prescription Assistance
The mission of the Partnership for Prescription Assistance Program is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies. Partners In Parkinson's
A recently launched program through the Michael J. Fox Foundation allowing information to be customized for your location. Parkinson's Institute In Sunnyvale
At the Parkinson’s Institute and Clinical Center, we provide patients with exceptional care, access to cutting-edge clinical trials, and are a leader in innovative research to transform the field of Parkinson’s treatment and fight to find a cure. Classes + Workshops in Sunnyvale CA area Parkinson and Movement Disorder Alliance The PMD Alliance suite of in-person workshops and events won’t just keep you informed and get you moving. They’ll help you build practical skills to employ every day and make connections in ways lively and unexpected. Neuro Life Online® puts you in touch—in real-time—with a community of experts and movement disorder allies. Wherever you live, through interactive access, we address everyday strategies and the potential of the whole person to live, move and thrive. Sacramento County This comprehensive, internet-based resource is for the elderly and people with disabilities, as well as their caregivers and service providers. Shaky Hands - A Kid's Guide To Parkinson's Disease
by Dr. Soania Mathur Dr Soania Mathur, Keynote speaker at PANC 2020 conference, has young onset PwP and is a medical doctor. Millions of people worldwide have Parkinson's disease. But it doesn't just affect those with the diagnosis, it impacts whole family units, including our children. When a child learns that a loved one has Parkinson's disease, it can be a frightening time for them because they don't understand what a diagnosis such as this actually means. This book hopes to address the questions that may naturally arise. What is Parkinson's disease? How does it feel to have Parkinson's? How is it treated? How do I deal with all the feelings I have as I see the one I love change? What can I do to help? Reading the information contained and encouraging open dialogue, will help children cope with a loved one's journey with Parkinson's. Shaky Paws Grampa book
Shaky Paws Grampa (SPG) is Kirk Hall, a nationally and internationally recognized Parkinson's Disease authority, speaker and advocate. His books are on the recommended reading lists for the Parkinson Disease Foundation (NPF), Michael J. Fox Foundation (MJFF), Lewy Body Dementia Association (LBDA), and Viartis. His blog contains 90+ articles and has been visited by readers from 60+ countries around the world. (Blog offline 2/26/20) Social Security Disability
The Social Security and Disability Resource Center website provides answers to questions concerning how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants filing for either SSD (social security disability) or SSI (supplemental security income) Parkinson's Disease Society of U.K. UC San Fran PD Clinic & Research Center Web MD Health Worldwide Education for Movement Disorders World Parkinson Congress The World Parkinson Congress Inc. is a nonprofit organization dedicated to providing an international forum for the latest scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease. By bringing physicians, scientists, allied health professionals, caregivers and people with Parkinson's disease together, we hope to create a worldwide dialogue that will help expedite the discovery of a cure and best treatment practices for this devastating disease. |
Resources for Prescription Assistance
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MEDLine plus Health Information
A service of the National Library of Medicine. A site that lists current trials for Parkinson's Disease and how you can enroll in them. Needy Meds
The mission of NeedyMeds has been to make information about assistance programs available to low-income patients and their advocates at no cost. Databases such as Patient Assistance Programs and Disease-Based Assistance, government programs and other types of assistance programs are the crux of the free information we offer online. |
Pfizer Helpful Answers
Pfizer Helpful Answers offers patient assistance programs to people without prescription coverage. These programs provide: Savings on Pfizer medicines, regardless of age or income; or free Pfizer medicines for people with limited incomes who qualify. RxAssist
Assist offers a comprehensive database of pharmaceutical companies' patient assistance programs which provide free medications to people who cannot afford to buy their medicine. RxAssist also provides practical tools, news and articles so that health care professionals and patients can find the information that they need. All in one place. |