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Dedicated to helping individuals and
families affected by Parkinson's disease and related conditions. "Building Community for the Journey." |
Coming Soon
Shelter in Place series
April is Parkinson’s Disease Awareness month and April 11th is World Parkinson’s Day. In honor of this, PANC is proud to present the “Shelter in Place” series.
This is a 30-minute, weekly radio style talk show chat between experts. Our local Parkinson experts will chat with regional and national experts on important Parkinson topics that are relevant to our current situation.
Each 30-minute segment will focus on such topics as COVID-19 and PD, Situational Anxiety, Dance for PD, Exercise when Sheltered, and Caregivers are on the frontline too.
Guest experts include Dr. Michael Okun (MDS and Medical Director of the Parkinson Foundation), Eli Pollard (Executive Director of the World Parkinson Coalition), David Leventhal (Program Director for Dance for PD), Connie Carpenter (wife and carepartner of Davis Phinney) and our very own Christine Shade (NeuroPT and Vice President of PANC).
Check back here for updates and for the call in number and listening code.
The first segment will launch soon and will include guest expert Dr. Michael Okun. Dr. Okun is an internationally recognized Movement Disorders Specialist and currently is the Chair of Neurology and Executive Director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health College of Medicine. He has served as the National Medical Director for the Parkinson’s Foundation since 2006. Our discussion will be on the topic of COVID-19 and PD.
Please join us and listen in on the conversation. Each week the upcoming week’s conversation will be posted. If you miss a past conversation, you won’t miss out. Past conversations will be recorded and posted on the PANC website.
This program was made possible with support from Boston Scientific.
This is a 30-minute, weekly radio style talk show chat between experts. Our local Parkinson experts will chat with regional and national experts on important Parkinson topics that are relevant to our current situation.
Each 30-minute segment will focus on such topics as COVID-19 and PD, Situational Anxiety, Dance for PD, Exercise when Sheltered, and Caregivers are on the frontline too.
Guest experts include Dr. Michael Okun (MDS and Medical Director of the Parkinson Foundation), Eli Pollard (Executive Director of the World Parkinson Coalition), David Leventhal (Program Director for Dance for PD), Connie Carpenter (wife and carepartner of Davis Phinney) and our very own Christine Shade (NeuroPT and Vice President of PANC).
Check back here for updates and for the call in number and listening code.
The first segment will launch soon and will include guest expert Dr. Michael Okun. Dr. Okun is an internationally recognized Movement Disorders Specialist and currently is the Chair of Neurology and Executive Director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health College of Medicine. He has served as the National Medical Director for the Parkinson’s Foundation since 2006. Our discussion will be on the topic of COVID-19 and PD.
Please join us and listen in on the conversation. Each week the upcoming week’s conversation will be posted. If you miss a past conversation, you won’t miss out. Past conversations will be recorded and posted on the PANC website.
This program was made possible with support from Boston Scientific.
STAY HOME! CALL IN-Learn! Don't forget to Exercise!
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New April 1, 2020
BOARD PRESIDENT'S MESSAGE
SEAN TRACY
April 1, 2020
Hello PANC Community!
Parkinson’s Awareness Month is designated as April each year.
History will record April 2020 as the year COVID-19 got in our way of celebrating together.
By now, you know that our major community and fund-raising events, support groups and other gatherings have been cancelled for April 2020.
Though disappointing on many levels, this must not deter our passion for helping each other, pushing for a cure, and building community for the journey. We must look to the future and prepare for the years ahead.
Part of my inspiration I receive from People with Parkinson’s (PwP) is the mantra, "hope and healing every day". How perfectly this applies to the uncertainty facing the world with this pandemic.
So, let’s think together as a community about what we CAN DO in this short period of life’s experience.
Of course, follow the five (clever folks at Google and the World Health Organization put this together)
DO THE FIVE - Help stop Coronavirus
1. HANDS Wash them often
2. ELBOW Cough into it
3. FACE Don't touch it
4. SPACE Keep safe distance
5. HOME Stay if you can https://www.who.int/
SO, WHAT CAN I DO FOR PARKINSON’S AWARENESS MONTH?
The PANC community is smart, insightful, and caring, so the Board wants to hear from you about your ideas to celebrate April 2020 as Parkinson’s Awareness Month.
Send us an email panc@panctoday.org with ideas, suggestions or comments and we will share with others (with your permission).
For me, I am doing some simple – yet hopefully impactful–things for April 2020.
1. Doing the Five
2. Wearing my PANC wrist band promoting PD awareness and the search for a cure
3. Working with the PANC team everyday planning for the future
4. Reaching out to someone in the PD community via telephone/email/text every day to share words of encouragement, hear concerns, assist where I can, get the organization’s work done, and guide PwP to expert resources that could help
5. Staying informed, not overwhelmed by the media 24/7 news cycle
6. Calling Mom Judy daily to tell her how much I love and appreciate her
The PANC Board and staff continue to post information on this website, virtually communicate, meet as a team, plan and prepare for our future.
We are staying connected, informed, aware, and casting foresight toward how these days will impact the lives of PwP and plan for the best annual conference ever on October 24, 2020. See you there!
Take good care,
Sean
SEAN TRACY
April 1, 2020
Hello PANC Community!
Parkinson’s Awareness Month is designated as April each year.
History will record April 2020 as the year COVID-19 got in our way of celebrating together.
By now, you know that our major community and fund-raising events, support groups and other gatherings have been cancelled for April 2020.
Though disappointing on many levels, this must not deter our passion for helping each other, pushing for a cure, and building community for the journey. We must look to the future and prepare for the years ahead.
Part of my inspiration I receive from People with Parkinson’s (PwP) is the mantra, "hope and healing every day". How perfectly this applies to the uncertainty facing the world with this pandemic.
So, let’s think together as a community about what we CAN DO in this short period of life’s experience.
Of course, follow the five (clever folks at Google and the World Health Organization put this together)
DO THE FIVE - Help stop Coronavirus
1. HANDS Wash them often
2. ELBOW Cough into it
3. FACE Don't touch it
4. SPACE Keep safe distance
5. HOME Stay if you can https://www.who.int/
SO, WHAT CAN I DO FOR PARKINSON’S AWARENESS MONTH?
The PANC community is smart, insightful, and caring, so the Board wants to hear from you about your ideas to celebrate April 2020 as Parkinson’s Awareness Month.
Send us an email panc@panctoday.org with ideas, suggestions or comments and we will share with others (with your permission).
For me, I am doing some simple – yet hopefully impactful–things for April 2020.
1. Doing the Five
2. Wearing my PANC wrist band promoting PD awareness and the search for a cure
3. Working with the PANC team everyday planning for the future
4. Reaching out to someone in the PD community via telephone/email/text every day to share words of encouragement, hear concerns, assist where I can, get the organization’s work done, and guide PwP to expert resources that could help
5. Staying informed, not overwhelmed by the media 24/7 news cycle
6. Calling Mom Judy daily to tell her how much I love and appreciate her
The PANC Board and staff continue to post information on this website, virtually communicate, meet as a team, plan and prepare for our future.
We are staying connected, informed, aware, and casting foresight toward how these days will impact the lives of PwP and plan for the best annual conference ever on October 24, 2020. See you there!
Take good care,
Sean
New from the California Parkinson's Disease Registry!!!!
Accomplishments and Updates
MANDATED REPORTING EXTENDED: On October, 12, 2019, Governor Gavin Newsom signed California State Assembly Bill (AB) 715, extending the sunset date for the Richard Paul Hemann Parkinson's Disease Program from January 1, 2020 to January 1, 2021. Deadlines for data submission for 2020 can be found on the CPDR website Click here
New FACT SHEET available: The end of September marked the third data submission deadline in the Parkinson's program. CPDR is now processing data received from one full year of mandated reporting (July 1, 2018 through June 30, 2019). This 2-page fact sheet provides an overview of operational highlights and data highlights from the registry. Download the fact sheet here.
Who We Are
The Parkinson Association of Northern California (PANC) is an organization dedicated to enhancing the lives of people with Parkinson's, their families and carepartners throughout our region.
We live our motto, "Building Community for the Journey."
We live our motto, "Building Community for the Journey."
What is Parkinson's disease?
Parkinson's disease (PD) is a chronic, progressive, neurological disease that destroys the cells in the mid brain which produce "dopamine," one of the chemicals that transmits movement control signals. When approximately 80% of these cells no longer produce dopamine, one or more of PD's primary movement symptoms begin to appear: resting tremor; slowness of movement; stiffness; and/or gait or balance problems. Other symptoms such as small cramped handwriting, lack of arm swing, and decreased facial expression may appear. (continued click here)
Upcoming Events
2020 Annual Conference
"I am More than Parkinson's"
With the assistance from a generous community of donors and volunteers, we are able to provide the following benefits for our region's Parkinson's community:
- Connect with over 37 support groups for people with PD and their caregivers
- Publish a quarterly journal, The Parkinson Path
- Present an annual education conference and tradeshow
- Provide respite opportunities for PD caregivers
- Offer housing safety modification opportunities through Rebuilding Together of Sacramento
- Present ParkinsonWISE® program for exercise and wellness professionals
- Support research for prevention and cure
- Actively promote community awareness
PANC is proud to facilitate a network of more than 37 area support groups. Please note that meeting dates and locations are subject to change. Contact the Support Group facilitator to verify meeting information.
What is ParkinsonWISE®? The Parkinson Association of Northern California partnered with Kaiser Permanente Neuroscience to provide targeted wellness education for fitness and wellness professionals that have clients with Parkinson's disease (PD) or those who want to work with this special group. To learn more about our ParkinsonWISE®trainings and to find ParkinsonWISE® certified trainers click the link above.
Our journal, The Parkinson Path, is provided to over 3,000 recipients throughout Northern California. The quarterly publication includes pertinent information and updates on events, support groups, services, new technologies, and articles provided by local PD experts.
