New from the California Parkinson's Disease Registry!!!!
Accomplishments and Updates
MANDATED REPORTING EXTENDED: On October, 12, 2019, Governor Gavin Newsom signed California State
Assembly Bill (AB) 715, extending the sunset date for the Richard Paul Hemann Parkinson's Disease Program
from January 1, 2020 to January 1, 2021. Deadlines for data submission for 2020 can be found on the CPDR website www.cdph.ca.gov/parkinsons
Assembly Bill (AB) 715, extending the sunset date for the Richard Paul Hemann Parkinson's Disease Program
from January 1, 2020 to January 1, 2021. Deadlines for data submission for 2020 can be found on the CPDR website www.cdph.ca.gov/parkinsons
New FACT SHEET available: The end of September marked the third data submission deadline in the Parkinson's program. CPDR is now processing data received from one full year of mandated reporting (July 1, 2018 through June 30, 2019). This 2-page fact sheet provides an overview of operational highlights and data highlights from the registry. Download the fact sheet here.
Parkinson Association of Northern California
Board President's message
Sean Tracy
Thank you for your interest in the Parkinson's Association of Northern California (PANC).
As the 2019-2020 President of the Board of Directors for PANC, I hope you will take a few minutes to
review our website and learn more about the amazing programs
and services we provide in support of the Parkinson's community, including:
38 different Support Groups throughout Northern California
Respite Caregiver Grants
ParkinsonWise program for exercise professionals
Medical Advisory Panel involving the major medical plans in Northern California
Education and Outreach through our Quarterly Journal and other resources
Annual Conference scheduled for October 26, 2019, in Sacramento, CA
As a Person with Parkinson's (PWP), a caregiver, family member, friend, an interested student or individual who wants to learn more about how PANC is "Building Community for the Journey," please reach out to us.
On behalf of the entire Board of Directors, thank you for your interest and support
of the Parkinson Association of Northern California and all those who are on their Parkinson's disease journey.
Sean Tracy, Board President 2019-2020
As the 2019-2020 President of the Board of Directors for PANC, I hope you will take a few minutes to
review our website and learn more about the amazing programs
and services we provide in support of the Parkinson's community, including:
38 different Support Groups throughout Northern California
Respite Caregiver Grants
ParkinsonWise program for exercise professionals
Medical Advisory Panel involving the major medical plans in Northern California
Education and Outreach through our Quarterly Journal and other resources
Annual Conference scheduled for October 26, 2019, in Sacramento, CA
As a Person with Parkinson's (PWP), a caregiver, family member, friend, an interested student or individual who wants to learn more about how PANC is "Building Community for the Journey," please reach out to us.
On behalf of the entire Board of Directors, thank you for your interest and support
of the Parkinson Association of Northern California and all those who are on their Parkinson's disease journey.
Sean Tracy, Board President 2019-2020
Who We Are
The Parkinson Association of Northern California (PANC) is an organization dedicated to enhancing the lives of people with Parkinson's, their families and carepartners throughout our region.
We live our motto, "Building Community for the Journey."
We live our motto, "Building Community for the Journey."
What is Parkinson's disease?
Parkinson's disease (PD) is a chronic, progressive, neurological disease that destroys the cells in the mid brain which produce "dopamine," one of the chemicals that transmits movement control signals. When approximately 80% of these cells no longer produce dopamine, one or more of PD's primary movement symptoms begin to appear: resting tremor; slowness of movement; stiffness; and/or gait or balance problems. Other symptoms such as small cramped handwriting, lack of arm swing, and decreased facial expression may appear. (continued click here)
Upcoming Events
The Sacramento Embarcadero Lions Club presents
The 4th Annual Robert G. Smith Walk to COP (Cancel Out Parkinson's)
Benefiting the Parkinson Association of Northern California
Save the Date: Saturday, April 4, 2020 Find out more here
The 4th Annual Robert G. Smith Walk to COP (Cancel Out Parkinson's)
Benefiting the Parkinson Association of Northern California
Save the Date: Saturday, April 4, 2020 Find out more here
Redding Parkinson Support Group-Annual Conference
Save the date: Friday, April 10, 2020
Where: The Gaia Hotel, Anderson, CA Cost: $10 registration Lunch included
Registration begins: February 17, 2020 Find out more here
Save the date: Friday, April 10, 2020
Where: The Gaia Hotel, Anderson, CA Cost: $10 registration Lunch included
Registration begins: February 17, 2020 Find out more here
Benicia Support Group - Parkinson's Awareness Rally
Save the Date: Saturday April 11, 2020
Where: Veteran's Hall 1150 1st Street Benicia, CA
10 am - 2 pm Find out more here
Save the Date: Saturday April 11, 2020
Where: Veteran's Hall 1150 1st Street Benicia, CA
10 am - 2 pm Find out more here
ParkinsonWise Training Santa Rosa CA
Save the Date: Saturday, April 18, 2020
Kaiser Permanente 401 Bicentennial Way Santa Rosa CA 95403
Registration Begins: NOW Click here
Save the Date: Saturday, April 18, 2020
Kaiser Permanente 401 Bicentennial Way Santa Rosa CA 95403
Registration Begins: NOW Click here
"I am More than Parkinson's"
With the assistance from a generous community of donors and volunteers, we are able to provide the following benefits for our region's Parkinson's community:
- Connect with over 37 support groups for people with PD and their caregivers
- Publish a quarterly journal, The Parkinson Path
- Present an annual education conference and tradeshow
- Provide respite opportunities for PD caregivers
- Offer housing safety modification opportunities through Rebuilding Together of Sacramento
- Present ParkinsonWISE® program for exercise and wellness professionals
- Support research for prevention and cure
- Actively promote community awareness
From A Carepartner's Perch
by Marianne Oliphant
Parkinson’s disease entered my life when my husband, Ron, was diagnosed in 2010. Parkinson’s doesn’t just strike the person with the condition, in most cases it’s a family disease. He and I embarked on this new adventure together.
At our first doctor’s visit, we were given a packet of information about Parkinson’s disease and about PANC. We started visiting support groups close to where we lived – 3 to begin with – and found all of them wonderful places of welcome and encouragement. No longer did we feel like we were traveling this path alone. We also attended the PANC annual conferences and, again, found so much information and comradery.
At our first doctor’s visit, we were given a packet of information about Parkinson’s disease and about PANC. We started visiting support groups close to where we lived – 3 to begin with – and found all of them wonderful places of welcome and encouragement. No longer did we feel like we were traveling this path alone. We also attended the PANC annual conferences and, again, found so much information and comradery.
PANC is proud to facilitate a network of more than 37 area support groups. Please note that meeting dates and locations are subject to change. Contact the Support Group facilitator to verify meeting information.
What is ParkinsonWISE®? The Parkinson Association of Northern California partnered with Kaiser Permanente Neuroscience to provide targeted wellness education for fitness and wellness professionals that have clients with Parkinson's disease (PD) or those who want to work with this special group. To learn more about our ParkinsonWISE®trainings and to find ParkinsonWISE® certified trainers click the link above.
Our journal, The Parkinson Path, is provided to over 3,000 recipients throughout Northern California. The quarterly publication includes pertinent information and updates on events, support groups, services, new technologies, and articles provided by local PD experts.
