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PARKINSON'S PARTNERS

Partner Organizations

Alzheimer's Association

Leading voluntary health organization in Alzheimer's care, support and research

American Academy of Neurology
Resources for the highest quality patient-centered neurologic care

American Parkinson Disease Association
PD outreach, support and education


APDA Information + Referral Center At Stanford
Info on Support groups, physicians, exercise in the Bay Area and Northern CA

 

Brian Grant Foundation
​Wellness, exercise and nutrition for the Parkinson's community

 

Brain Talk Communities
Online patient support groups for neurology

 

CA DMV Senior Guide for Safe Driving

Driver skills self-assessment questionnaire. Call Senior Driver Ombudsman at 916-657-6464

California Phones CA Telephone Access
Free specialized phones that make it easier to hear, dial, and call

CA Caregiver Resource Centers

Resource for caregivers offering classes, webinars, policy and advocacy

 
Coalition for Compassionate Care of CA

Promotes high-quality care for those who are seriously ill or nearing the end of life

The Conversation Project -- End of Life

Helping people share their wishes for care through the end of life

CurePSP
Society for progressive supernuclear palsy

Davis Phinney Foundation 

Resources, webinars, and the free Every Victory Counts® manual

Legal Services of Northern California
Serves 23 counties in Northern California with legal services-senior, health +health insurance

Lewy Body Dementia Association 

Support of those affected by Lewy body dementias, raising awareness and promoting scientific advances

Life Care Planning
Advance care planning.  Devoted to reflecting on your values and sharing your wishes

LSVT Foundation
Improving communication and movement in individuals with Parkinson disease 

MEDLine plus Health Information
Lists current trials for Parkinson's disease and how to enroll in them

Michael J Fox Foundation
Information on PD and related diseases. Also supports research and lobbying policymakers

Move It! 

An exercise and movement guide for Parkinson's disease  

Needy Meds 

Information about assistance programs available to low-income patients

National Institutes of Health

National Institute of Neurological Disorders and Strokes

North State Therapy Choir
Led by board certified music therapists. A choir for individuals with Parkinson's Disease

Parkinson's Foundation

Focuses on Parkinson's disease research, education and public advocacy

Parkinson and Movement Disorder Alliance
Strategies and the potential of the whole person to live, move and thrive with PD

 

PDActive

East Bay group promoting fitness and activities for Parkinson's disease


Placer Protects - Placer County DA's office services for Seniors
Ensures the safety and protection of the county’s senior citizens


Rock Steady Boxing
A unique form of physical exercise for people
living with Parkinson’s

RxAssist 

Pharmaceutical companies' patient assistance programs which can assist with medication cost


Sacramento County Network of Care
Internet-based resource is for the elderly as well as their caregivers and serv
ice providers

 

Shaky Hands - A Kid's Guide To Parkinson's Disease 

Children's book by Dr. Soania Mathur who has young onset PD and is a medical doctor
 

Shaky Paws Grampa 

Children's book by Kirk Hall and PD blog

Shining Care-Healthy Aging 

Non-profit serving Shasta, Siskiyou, Tehama and Trinity Counties

Social Security Disability

Answers to questions concerning how to apply for disability, etc.

UCSF Mvmt Diorders & Neuromodulation Ctr 

Support groups in SF and clinical trials

World Parkinson Congress

Dedicated to providing an international forum for the latest scientific discoveries

Young Onset Parkinson's Network  

Education, fitness and community for YOPD

Topics

Books and Magazines for Adults
American Academy of Neurology
Davis Phinney Foundation


Books for Children Explaining PD
Shaky Hands - A Kid's Guide To Parkinson's
Shaky Paws Grampa


Brain Donation
APDA Brain donation
NIH Brain and Tissue Repository
Stanford Alzheimer's and PD Brain donation
Parkinson Foundation "What is Brain Donation?"


Caregiver Assistance
CA Caregiver Resource Centers
Coalition for Compassionate Care of CA
Life Care Planning
Shining Care-Healthy Aging

Clinical Trials
MEDLine plus Health Information
Michael J Fox Foundation

UCSF Mvmt Disorders & Neuromodulation Ctr

Disease Specific

Alzheimer's Association

CurePSP
Lewy Body Dementia Association

Disability assistance
CA DMV Senior Guide for Safe Driving
California Phones CA Telephone Access


End of Life Planning 
CA Caregiver Resource Centers
Coalition for Compassionate Care of CA
The Conversation Project -- End of Life
Life Care Planning
Shining Care-Healthy Aging

Exercise 
Brian Grant Foundation
Davis Phinney Foundation
Move It!
PDActive
Rock Steady Boxing


General PD information

American Parkinson Disease Association
Davis Phinney Foundation
Michael J Fox Foundation
Parkinson's Foundation


Information and Referral
APDA Info+ Referral Center at Stanford

Legal Assistance
CA Caregiver Resource Centers
Legal Services of Northern California


Music and Dance Therapy/Exercise
North State Therapy Choir

Neurology and Brain
A
merican Academy of Neurology
Brain Talk Communities


Newly Diagnosed Resources
Davis Phinney Foundation
Michael J Fox Foundation
Parkinson's Foundation


Prescription Assistance Medicine Assistance Tool
EDLine plus health Information
Needy Meds
RxAssist


Research
Michael J Fox Foundation
World Parkinson Congress
Movement Disorder Society


Spanish language resources
American Parkinson Disease Association
CA Caregiver Resource Centers
Parkinson Foundation
Michael J Fox Foundation


Speech/Swallowing Improvement
LSVT Foundation

YOPD Resources 
Brian Grant Foundation
Davis Phinney Foundation

Michael J Fox Foundation
Parkinson and Movement Disorder Alliance
APDA Stanford
Young Onset Parkinson's Network



 

 

As a person with Parkinson's, it is important to continue to learn about the specifics of your

individual condition and the options for physical, mental treatment, and spiritual treatment.

The organizations below, which are organized alphabetically and by subject,

may help you locate solutions that are beneficial to your Parkinson's journey. 

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